Katy Skipworth

Held In Our Hearts has been an incredible support to me and my family ever since our baby son, Alex, died aged 3 weeks in February 2018 due to a severe congenital heart defect.  When we returned home from the hospital without Alex we felt like we were the only people in the world that this had ever happened to, which was terrifying and isolating, despite the well-meaning messages and support from family and friends.  We were lucky to be put in contact with Held In Our Hearts within a few days by our Health Visitor and I remember the first phone call with Nicola as a beam of light into our blackened world, to talk to someone who had been in the same position and who knew exactly how we were feeling was incredible as we felt so alone and hopeless in our grief.

Over the turbulent years since Alex died I regularly met with my peer supporter who showed incredible understanding of my grief for Alex and also for my several early miscarriages.  I was also supported through my subsequent pandemic pregnancy by the wonderful pregnancy after-loss group.

I have been hugely privileged to be a member of the peer support team for the last 3.5 years and am excited to join the Lothians Hospital to Home team where I can continue to offer the support and understanding that was shown to me to bereaved families in their own homes in those first overwhelming weeks and months after losing their precious baby.

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